Movin' for a good cause

"They don't know what causes it and there is nothing I could have done to prevent it," said DeLorenzo. "There is not a lot known about it."

She said she's been emailing doctors from all over, but they don't usually have something confident to say about a treatment option.

"My options are very limited but I am not giving up on him because new stuff opens up every day. He is being very brave about this whole thing," she said. "He knows what he is dealing with and he is very positive."

The tumor is on his brain stem and it can't be operated on. A biopsy also hasn't been done yet because it is risky to do because of where the tumor is located.

"It is just in a bad spot," she said.

He is nearly done with a round of radiation treatment and she said there have been some improvements. The treatment is only a temporary fix, though.

"I have been researching like crazy but it is just hard because since it is such a rare tumor there is not a lot out there," said DeLorenzo. "We are trying to get him in a clinical trial there is no guarantees on getting him in."

Also, since he already began radiation treatment, he is not eligible for some of the clinical trials. Most of the ones he isn't eligible for involve chemotherapy, but DeLorenzo said it doesn't appear to be an effective treatment at this point.

His family was wearing custom shirts during the event.

When Devon was first in the hospital, DeLorenzo's oldest son went to the store and bought everyone Superman shirts. The shirt idea came from this, with the "S" replaced with a "D" and with "Believe" written above it for their belief there is a cure. His soccer number and last name are also on the back of the shirt. Now the family has started to sell the shirts themselves to help raise awareness and support.

"There are miracles and we are hoping there is one for Devon," she said. "The love and support from our friends and families has been amazing."


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