Little ‘hero’ inspires family, friends

Benefit to be held for child with Marfan Syndrome

The Siciliano family of Latham were told by their doctor they should be getting running shoes for yet-to-be-born baby Logan, but when he was born it turned out he might not ever be able to run.

Logan Siciliano was born in January with a skeletal defect called Marfan Syndrome. It was something the family knew he had a chance of having since his father, Mark Siciliano, was born with a mild case of Marfan. So when Stephanie Siciliano went in for her 20-week ultra sound, doctors thought they might have detected a problem with his heart. When they went in for a further diagnostic with a cardiologist, Logan didn’t seem to have a problem.

“The doctor said there was nothing wrong with the baby’s heart,” she said. “Then he said if anything we should buy the baby a pair of running shoes because he’s very active. Ironically, he won’t ever be able to run.”

In fact, Logan will have a problem for the rest of his life, Siciliano said. He will never be able to do anything strenuous. She added that he also has a mild case of scoliosis that could present itself at any point. That could mean he would have to get a back brace or may need spinal fusion.

Now, family and friends are putting together a benefit event for the family to help them pay for some of the hospital bills they have already amassed and will have to continue paying. There will be musical acts, magicians, clowns, a face painting booth and even a hula hoop station. Meal gift certificates, bottles of wine and quilts have been donated as gifts to be raffled off during the day.

Siciliano said the amount of support that has been coming in has been overwhelming and most of it is coming from unlikely places.

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