Little ‘hero’ inspires family, friends

Benefit to be held for child with Marfan Syndrome

“People who have never met my husband, me or my son are giving to us,” Siciliano said. “It is very overwhelming. I guess the whole experience is very humbling.”

The family had been making frequent trips to Albany Medical Center for treatments for Logan. It was soon discovered that there were several valves in Logan’s heart that needed to be repaired, but doctors at Albany Medical Center said that it wasn’t something that has been done for infants.

After researching different hospitals that have done this type of surgery, the family soon found Dr. Del Nido at the Children’s Hospital in Boston. The doctor was able to repair three of the four valves, the aortic, the mito and the tricuspid valves, during a surgery on Sept. 1.

Siciliano spent a full 52 days in Boston with Logan before he was cleared to be brought back home. She said their time at the hospital made her miss some of the little things in life that she usually enjoyed at home. This will not be the only time he will have to have this surgery, though.

The situation has taken its toll on the family. Siciliano said that the family was once living off of two full-time jobs but is now only living off of a part-time salary. Mark Siciliano took a month off of work to be with Logan, but because he earns an hourly wage he didn’t take in any money.

“There are car payments and mortgages to be paid,” Siciliano said. “At some point we have to make a decision. But in the end, you’re not going to remember what you didn’t pay, you’re going to remember what you did with what you had.”

The hospital visits have gone down, Siciliano said, as now they are going just once a month for checkups instead of a minimum of once every two weeks. What is remarkable, though, is that Logan has appeared to be in good spirits throughout the process.

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